Time seems to be flying by this year with hospital appointments and with my daughter home from medical school it seems like only yesterday it was Easter!
Anyway thats no real excuse for not updating this blog but its the only one I have got so it will have to do! There was also the matter of having to go to work!
The PET scan and both biopsies showed nothing that was not already known so treatment started on August 8th. As I am on a randomised trial the computer chose the drug for me or to be precise the choice was either Lenalidomide (trial drug) or another one of the physicians choice. As I was selected to have physicians choice I have been given Etoposide in oral form as it is very difficult for me to have anything by IV as I have very deep and hidden veins which also makes blood tests extremely difficult, the record is 12 attempts so far.
As I said treatment started last Monday and I had to be at the hospital by 9 in the morning. The day started with a blood test followed by a wait of several hours for the result and to be seen by the doctor. This was than followed by another wait of several hours waiting for the drugs to be dispensed! The doctor prescribed the medication on a 14 days on and a 14 days off basis but the pharmacy said no its 21 days on and 7 off! This caused even more delay but it has now been resolved as the 14 on and 14 off basis.
One of the possible side effects of this drug is hair loss but I had a hair cut on Tuesday but it seems to be growing again so what will be will be! Last time I lost my hair it grew back curly which everyone seemed to like, every one except me that is.
A very special friend has been in hospital this week for a knee operation and to say I have been worried is an understatement but she is home now but I am still worried for her.
Anyway I promise I will try and do another entry soon but I have a team meeting and a finance directorate meeting at work next week so its going to be another long week.